too young to be sick.

Cancer is a lonely disease and it’s fucking depressing. I found solace in cancer social media, especially AYA (Adolescent and Young Adult) cancer social media where the memes are hot and the dark humour brightens up my day. It has been comforting to read and hear stories similar to mine, of lives interrupted by this beast of a disease at a time when our adult lives are about to get started. This age is supposed to be the prime of our lives, but now it’s a period of devastation.

It’s an odd group to be in. We’re too old for pediatric cancer, but also told we’re too young have cancer. Yet here we are, sitting in a room of mostly older patients accompanied by their children or grandchildren. We’ve been mistaken as a caregiver or visitor, until we show our hospital bracelets to prove them wrong.

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positivity isn’t enough

It’s hard to talk to someone who’s going through cancer or grief, we get it. But for the love of all things beautiful, don’t give us advice or “inspirational quotes” when we’re not asking for it.

I am tired of the toxic positivity from people who aren’t genuine when they “check in”. Stop calling me your hero or your inspiration. My experience doesn’t need to be meaningful or inspiring for my existence to be worthy. I am just trying to continue living. There’s nothing else to it.

“God gives the hardest battles to His toughest soldiers.”

So if I was weaker, I could have continued to have a normal life? I could have had the option to have biological children? I could have lived the rest of my life not terrified of a relapse for the years that follow if I survive?

“You don’t look sick.”

I’ve lost my hair, and a bald head is probably a cancer trademark. So I do kind of look the part. But I get it, you want to say I am more responsive, I look like I got more energy, I’m smiling more, I have more of an appetite, I don’t look like I’m struggling to exist… say that. I “don’t look sick” because this is a better day than others, but I am still sick. Don’t deny it. It still exists even if you can’t see.

“At least you get time off work.”

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it grows back. but you can’t go back.

You were told about all of the possible side effects of the chemotherapy. You know of one of them the longest because it’s the one you’ve seen in the world during the earlier part of your life. You know you will lose your hair.

Your doctor said that it happens after the first two weeks. You know what to expect, and you get one of the nurses to chop your hair off to make it easier when the hair loss starts. The plan is to shorten it, then buzz it off once the hair loss gets too much. One of the other patients who was there before you has warned you that the hair will be everywhere.

So you wait.

Day 16 comes, and you wake up with some of your hair stuck on your pillows, and plenty all over your shirt. It’s happening.

You brush your hair to see if it will help, but you realize it will only keep getting more and more hair because they’re not sticking to your scalp anymore. You stop. You wonder how long you can keep your hair since it’s thick. Peeking in the trash, it looks like you lost a lot of hair, but the hair on your head still looks the same as yesterday.

Continue reading “it grows back. but you can’t go back.”

bad blood.

As an adult, you become responsible for yourself. You buy your own groceries, cook your own food, wash your own dishes, and clean your own home. You call maintenance when something’s not working right in your apartment, like the radiator knocking. The worst part is calling the doctor when something isn’t feeling right. You’re still alive and breathing, nothing alarming, maybe a tiny concern… but what do you even tell the doctor?

You do it anyway. You describe how you’re feeling, as best you can, in the fifteen minutes you have them on the phone. You sigh in relief when they order bloodwork and send a referral for physiotherapist for that stiff neck you’ve been living with. Finally, things are moving and you can get some answers.

You get woken up the next day by a call from your doctor’s office, but he’s not your doctor. He tells you that your bloodwork came back and the results are very low. He urges you to go to Emergency, and that they would be able to help you. You don’t understand the urgency of the situation, so you have a bit of breakfast for some sustenance and slowly get ready.

But you could only move slow. Each breath you take seems finite. You wear the coziest sweatpants, which didn’t take much effort to put on. You make sure you have your phone and your IDs on you so you won’t have to run (or crawl) back for them.

You manage to park across the street from the hospital, but walking across the street still gassed you out three-quarters of the way. You beg your boyfriend for a quick break so you could catch your breath. It’s funny when your body’s telling you something but it gets lost in translation. You need people like doctors and nurses translating for you.

You have shortness of breath and you’ve had a cough for a week now, but you know it isn’t COVID because you got tested not long ago. You tell the screener your predicament, and he makes you wait to be called in. You tell your boyfriend to wait in the car while you find out how long this is going to take and they don’t allow visitors or companions inside because of the pandemic.

A triage nurse calls you in and you describe everything you’re feeling. She says you’ll get some transfusions and you’ll be good as new, but each bag of blood takes about a couple hours and you would need three or four. So you text your man, tell him to go home while he waits and you’ll let him know when you’re done.

You get set up in a room by yourself. A nurse comes in to chat with you while taking some blood so that the hospital can run their own tests. He also asks you to pee in a cup to make sure you’re not pregnant, and the bathroom is around the corner from your room. You make an attempt but nothing would come out, and you come back to the room almost gasping for air.

An hour later, a doctor shows up. He asks you how long have you been feeling unwell and you tell him the truth – it didn’t get this bad until December, but looking back, it may have started in September or even before. He then starts talking about the results of their bloodwork… and you hear a statement you’ve only seen on tv and movies.

“These numbers are concerning because they are consistent with cancer.”

Continue reading “bad blood.”

working on gifting warmth

Learning how to crochet began with wanting to make little items for our little apartment. Dishcloths. Coasters. Hotpads. Swiffer covers. Just small items that we could reuse. I ended up making two hot pads using two $3 balls of cotton yarn instead of spending over $15 for oven mitts. We’ve stopped buying disposable sponges and swiffer pads, and just cycle through crocheted cotton dishcloths and rags in the washer. Honestly, the goal was just to practice my crochet stitches, so these small projects were perfect. Being able to minimize waste (if we actually were, really) was a bonus.

With Christmas coming up, and from finding beautiful yarn on the internet, I decided to take on bigger projects for presents. I didn’t want to overwhelm myself with wearables like sweaters or cardigans – maybe next year. So shawls, scarves and blankets became the plan that began in late August.

I ordered cakes of gorgeous yarn for my birthday. Yes, cakes! Massive rolls are actually called cakes – just the perfect gift! For me and for my family… eventually.

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by the blood of the gods!

For a few weeks, I have occasionally witnessed my boyfriend’s journey through the game Hades. It was interesting to see how this game reimagined Greek gods and goddesses and how they were integrated to a game. While I crocheted, working on a scarf I was making for my mom, I would blurt out random useless Greek mythology trivia at him. Trivia that I started learning as early as second grade because I learned of the origins of my own name.

Coupled with a bias towards Disney’s Hercules, my obsession with mythology began. After exhausting the well-known Greek myths, I tried learning about the Roman myths. After all, Aurora was my Greek goddess’ Roman equivalent, and Aurora was also the name of Disney’ Sleeping Beauty. Useless info for someone who isn’t me, sure, but 8-year-old me thought that connection was cool as hell.

But I got bored of the Roman stories and gods. The Greek gods were like Marvel and the Romans were DC. *shrug*

Anyway, back to the show. Hades (the game) put me on a Greek myth mood and Netflix released Blood of Zeus just in time. (spoilers ahead, btw)

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the (side) hustle

There have been a few people I’ve met who promote having a side hustle while also having a 9-5. Whether that side hustle is some MLM or a legitimate hustle where they sell something they’ve made, doesn’t make it any less of a hustle.

A real good baker I know makes beautiful sweets and cakes on the side for birthdays and weddings. She makes fancy fondant cakes for money every now and then. An old coworker has some sports fashion line going. They charge a reasonable price for their products. Those who are in “direct sales” though… well, they’re a whole other thing. Respect for the people doing the hustle, but it sucks that they prey on vulnerable people (and sometimes even desperate people who are struggling) to make profits. Whatever. MLMs, look them up. There are a list of all of them somewhere on the internet if you’re curious.

But – my question is – why supplement your income with a side hustle? Why can’t we just get paid a liveable wage. For four years, I was serving burgers and fries in the McMillions. Then I was getting paid below-minimum server wage, depending on tips that range between 0% to 25% depending on the guest. I left the food service life after getting my first office job, which I was super thankful for because it was a permanent job with employer-paid benefits and vacation. Yeah, I was able get my dental expenses covered and I was able to finally remove my problematic wisdom teeth for an affordable fee, but soon after, I realized that it still wasn’t enough to survive on.

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